International Prophylaxis Study Group (IPSG)
Advancing Hemophilia Care Through Global Collaboration
Providing up-to-date information about activities in hemophilia and other inherited bleeding disorders, and its five Expert working Groups, including educational webinars, and scientific publications from the IPSG.
About IPSG
The International Prophylaxis Study Group (the IPSG) is a not-for-profit collaborative group of health care professionals involved with the assessment and care of individuals with inherited bleeding disorders, in particular hemophilia A and B. The goal of the IPSG is to facilitate the acquisition of new knowledge regarding therapies (including factor and non-factor hemostatic therapies and gene therapy) in persons with severe inherited bleeding disorders, focus the hemophilias, and to disseminate this information globally.
Recent
Publications
IPSG’s research contributions include peer-reviewed studies, clinical guidelines, and outcome measurement tools.
Healthcare Professional Identified Priorities for a New Musculoskeletal Examination Scoring System for People With Hemophilia-an International Consensus.
Authors
Teshler L, Abad A, Aspdahl M, Avila L, Bladen M, Funk S, Hilliard P, John JA, Manco-Johnson M, Net JV, Stephensen D, St-Louis J, Timmer M, Warren BB, Wright FV, Zourikian N, Feldman BM.
Citation
Haemophilia. 2026 Aug 27. doi: 10.1111/hae.70368. Epub ahead of print. PMID: 42659406.
Point-of-care musculoskeletal ultrasound for hemophilic arthropathy: a scoping review of scanning protocols by the Imaging Expert Working Group of the International Prophylaxis Study Group
Authors
Nguyen KT, Bakeer N, von Drygalski A, Babyn P, Pergantou H, Dunn A, Lundin B, Strike K.
Citation
Res Pract Thromb Haemost. 2025 Sep 18;9(7):103185. doi: 10.1016/j.rpth.2025.103185.
Exploring the impact of laboratory reagents on pharmacokinetic profiling
Authors
Chelle P, Hajducek D, Iserman E, Iorio A, Edginton A, on behalf of the International Prophylaxis Study Group
Citation
Haemophilia. 2025 Mar 7.DOI: 10.1111/hae.70021. Online ahead of print.