International Prophylaxis Study Group (IPSG)
Advancing Hemophilia Care Through Global Collaboration
Providing up-to-date information about activities in hemophilia and other inherited bleeding disorders, and its five Expert working Groups, including educational webinars, and scientific publications from the IPSG.
About IPSG
The International Prophylaxis Study Group (the IPSG) is a not-for-profit collaborative group of health care professionals involved with the assessment and care of individuals with inherited bleeding disorders, in particular hemophilia A and B. The goal of the IPSG is to facilitate the acquisition of new knowledge regarding therapies (including factor and non-factor hemostatic therapies and gene therapy) in persons with severe inherited bleeding disorders, focus the hemophilias, and to disseminate this information globally.
Recent
Publications
IPSG’s research contributions include peer-reviewed studies, clinical guidelines, and outcome measurement tools.
Exploring the impact of laboratory reagents on pharmacokinetic profiling
Authors
Chelle P, Hajducek D, Iserman E, Iorio A, Edginton A, on behalf of the International Prophylaxis Study Group
Citation
Haemophilia. 2025 Mar 7.DOI: 10.1111/hae.70021. Online ahead of print.
International Prophylaxis Study Group (IPSG) Haemophilia Joint MRI Scale Version 2.0. Letter to the Editor
Authors
Lundin B, Bakeer N, Dunn AL, Gibikote S, Keshava SN, Ljung R, Papakonstantinou O, Pergantou H, Strike K, von Drygalski A, Zhang N, Babyn P, Dover S, Doria AS
Citation
Haemophilia. 2024; 30: 862-864. DOI: 10.1111/hae.15010
Challenges associated with access to recently developed hemophilia treatments in routine care – healthcare professionals’ perspectives.
Authors
Berger K, O’Rourke RH, Matteo Nicola DD, Batorova A, Kavakli K, Mannuccio PM, Wolfgang Schramm W, Rhonda BL, Aledort L on behalf of the International Prophylaxis Study Group.
Citation
Hematologica. 2024 Mar 1; 110(3):673-682. DOI: 10.3324/haematol.2024.285647