Dr. Sharon Funk
PT, DPT
Biography
Sharon has been treating persons with hemophilia for over 41 years, and was a founding member of the National Hemophilia Foundation’s (now the National Bleeding Disorders Foundation -NBDF) Physical Therapy Working Group. She developed the joint evaluation tool for the Joint Outcome Study; a prospective, randomized study comparing the joint outcomes of young boys with hemophilia on primary prophylaxis versus those receiving on-demand therapy. She has been involved in the development and psychometric testing confirming the reliability and validity of the Hemophilia Joint Health Score. (HJHS), an impairment measure for evaluating joint disease in hemophilia.
She is currently the co-chair of the Musculoskeletal Health Expert Working Group of the Hemophilia International Prophylaxis Study Group, of which she has been a member for the past 21 years. She is a member of the American Physical Therapy Association, the National Bleeding Disorders Foundation (NBDF) and the World Federation of Hemophilia Musculoskeletal Committee. In 1997, she was the recipient of the first NHF Physical Therapist of the Year Award and in 2001 she received the National Hemophilia Foundation Physical Therapy Excellence Fellowship.
Key Publications
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St-Louis J, Abad A, Funk S, Tilak M, Classey S, Zourikian N, McLaughlin P, Lobet S, Hernandez G, Akins S, Wells AJ, Manco-Johnson M, John J, Austin S, Chowdary P, Hermans C, Nugent D, Bakeer N, Mangles S, Hilliard P, Blanchette VS, Feldman BM. The Hemophilia Joint Health Score version 2.1 Validation in Adult Patients Study: A multicenter international study. Res Pract Thromb Haemost. 2022 Mar 25;6(2):e12690. doi: 10.1002/rth2.12690.
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Feldman B; Funk S; Bergstrom BM; Zourikian N; Hilliard P; van der Net J; Engelbert R; Petrini P; van den Berg HM; Manco-Johnson MJ; Rivard GE.; Abad A and Blanchette V. Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS). Arthritis Care & Research . 2011 Feb; 63 (2):223-30.
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Wiedel J; Stabler S; Geraghty S and Funk S. Joint Replacement Surgery in Hemophilia. World Federation of Hemophilia Monograph Series 2010.
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Soucie JM.; Wang C; Forsyth A; Funk S; Denny M; Roach K; Boone D. Range of Motion Measurements: Reference Values and a Database for Comparison Studies. Haemophilia.. May 2011;17(3):500-507.
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Feldman BM, Funk S, Lundin B, Doria AS, Ljung R and Blanchette V. Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG). Haemophilia 2008, 14 (Suppl.3), 162-169.
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Manco-Johnson MJ, Abshire TC, Shapiro AD, Riske B, Hacker MR, Kilcoyne R, Ingram JD, Manco-Johnson ML, Funk SM, Jacobson LJ, Valentino LA, Hoots WK, Buchanan GR, DiMichele D, Recht M, Brown D, Leissinger C, Bleak S, Cohen A, Mathew P, Matsunaga A, Medeiros D, Nugent D, Thomas GA, Thompson AA, McRedmond K, Soucie JM, Austin H, and Evatt BL. Recombinant Factor VIII For the Prevention of Joint Disease in Children with Severe Hemophilia: Prophylaxis Compared With Episodic Treatment. NEJM 2007;357:535-44.
Key Institutions
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University of Colorado Anschutz Medical Campus
Hemophilia and Thrombosis Center
Colorado, USA -
University of Colorado Anschutz Medical Campus
Department of Pediatrics
Colorado, USA
Current Positions/Chairs
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Co-Chair
Musculoskeletal Health Expert Working Group- International Prophylaxis Study Group (IPSG) -
Physiotherapist
University of Colorado Hemophilia and Thrombosis Center
Research Interests
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Identifying and quantifying early joint disease in hemophilia and the development of valid tools by which to track change and measure outcomes
Research Activities
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Physiotherapist for the follow-up study looking at long-term prophylaxis in children and a study looking at secondary prophylaxis in adults
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Coordinator of joint physical examination for the Joint Outcomes Study (Manco-Johnson, NEJM, 2007)
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HJHS Reliability (2003) and Validation Studies (2005-2007)
Publications
The Hemophilia Joint Health Score version 2.1 Validation in Adult Patients Study: A multicenter international study.
Authors
St-Louis J, Abad A, Funk S, Tilak M, Classey S, Zourikian N, McLaughlin P, Lobet S, Hernandez G, Akins S, Wells AJ, Manco-Johnson M, John J, Austin S, Chowdary P, Hermans C, Nugent D, Bakeer N, Mangles S, Hilliard P, Blanchette VS, Feldman BM.
Citation
Res Pract Thromb Haemost. 2022 Mar 25;6(2):e12690. doi: 10.1002/rth2.12690. Erratum in: Res Pract Thromb Haemost. 2022 Apr 25;6(3):e12713. PMID: 35356667; PMCID: PMC8956786.
Musculoskeletal Ultrasound in Hemophilia: results and recommendations from a global survey and consensus meeting
Authors
Bakeer N, Dover S, Babyn P, Feldman BM, Drygalski A, Doria AS, Ignas DM, Abad A, Bailey C, Beggs I, Chang EY, Dunn A, Funk S, Sridhar Gibikote S,Goddard N , Hilliard P, Keshava S, Kruse-Jarres R, Li Y, Lobet S, Manco-Johnson M, Martinoli C, O’Donnell JS, Papakonstantinou O, Pergantou H, Poonnoose P, Querol F, Srivastava A, Steiner B, Strike K, Timmer M, Tyrrell PN, Logi Vidarsson L, Blanchette, VS
Citation
Res Pract Thromb Haemost . 2021 Jul 10;5(5):e12531. doi: 10.1002/rth2.12531. eCollection 2021 Jul.
Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS.
Authors
Kuijlaars IAR, van der Net J, Feldman BM, Aspdahl M, Bladen M, de Boer W, CuestaBarriuso R, Matlary RED, Funk SM, Hilliard P, John JA, Kempton CL, de Kleijn P, MancoJohnson M, Petrini P, Poonnoose P, St-Louis J, Thomas S, Timmer MA, Trakymiene SS, van Vlimmeren L, Fischer K
Citation
Haemophilia. 2020 Oct 15. doi: 10.1111/hae.14180. Epub ahead of print. PMID:33058441.
Reference Ranges of HJHS Scores in Healthy Adult Males without Hemophilia
Authors
St-Louis J , Abad A , Akin S , Austin S , Chowdary P , Classey S , Funk S , Hernandez G ,Hilliard P, Manco-Johnson M , S. Mangles S , McLaughlin P , Nugent D , Shapiro A, Srivastava A , Tilak M , Wells A , Zourikian N , Blanchette V , Feldman BM.
Citation
Research Practice in Thrombosis and Haemostasis 2020; 4 (S1): 521, PB1032.
Elevated HJHS Scores in healthy adult males without hemophilia
Authors
Feldman B, Zourikian N, Funk S, Tilak M, Lobet S, Manco-Johnson M, Srivastava A, Hilliard P, Tiseo L and St-Louis J
Citation
Haemophilia 2018; 24 (S5): 176, W- FPMED01- 002
Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS).
Authors
Feldman BM, Funk S, Bergstrom B-M, Zourikian N, Hilliard P, van der Net J, Engelbert RHH, Petrini P, van den Berg M , Manco-Johnson M, Rivard GE, Abad A, and Blanchette VS.
Citation
Arthritis Care & Research 2011 Feb; 63 (2):223-30.
The Haemophilia Joint Health Score (HJHS) international validation study.
Authors
Feldman B M, Funk S, Hilliard P, van der Net J, Zourikian N, Bergstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and on behalf of the International Prophylaxis Study Group.
Citation
Haemophilia 2008, 14 (S2), 83 # 12 PO 85.
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG).
Authors
Feldman BM, Funk S, Lundin B, Doria AS, Ljung R, and Blanchette V.
Citation
Haemophilia 2008, 14 (Suppl. 3), 162-169.
The economics of haemophilia prophylaxis: governmental and insurer perspectives. Proceedings of the Second International Prophylaxis Study Group (IPSG) Symposium.
Authors
Feldman BM, Aledort L, Bullinger M, Delaney FM, Doria AS, Funk S, Giangrande P, Lundin B, Manco-Johnson M, Miners A, Scriba PC, Srivastava A, Schramm W and Blanchette VS.
Citation
Haemophilia 2007 Nov; 13 (6): 745-749.
Hemophilia joint health score reliability study.
Authors
Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation
Haemophilia 2006 Sept; 12: 518 – 525.
Reliability study of the Hemophilia Joint Health Score.
Authors
Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation
Haemophilia 2004 Oct; 10 (S3): 79 # 16 S 03.
Hemophilia Joint Health Score instructional video and manual.
Authors
Hilliard P, Abad A, Bradley CS, Funk S, Zourikian N, and Bergstrom B-M.
Citation
Haemophilia 2006 May; 12 (S2): # 18 FP 532
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions.
Authors
Manco-Johnson MJ, Pettersson H, Petrini P, Babyn PS, Bergstrom B-M, Bradley CS , Doria AS, Feldman BM, Funk S, Hilliard P, Kilcoyne R, Lundin B, Nuss R, Rivard G, Schoenmakers MA, van den berg M, Wiedel J, Zourikian N, and Blanchette VS.
Citation
Haemophilia 2004 Oct; 10 (S4):88 – 93.