Publications
The International Prophylaxis Study Group (IPSG) is committed to advancing hemophilia research through peer-reviewed publications, clinical studies, and scientific presentations. Our work focuses on prophylaxis, pharmacokinetics, imaging, musculoskeletal health, and access to care, with the goal of improving treatment strategies and patient outcomes.
Below is a collection of IPSG-authored and collaborative publications, including studies on long-term prophylaxis, outcome measurement tools, and innovative treatment approaches. These resources serve as valuable references for clinicians, researchers, and healthcare policymakers worldwide.
Healthcare Professional Identified Priorities for a New Musculoskeletal Examination Scoring System for People With Hemophilia-an International Consensus.
Authors
Teshler L, Abad A, Aspdahl M, Avila L, Bladen M, Funk S, Hilliard P, John JA, Manco-Johnson M, Net JV, Stephensen D, St-Louis J, Timmer M, Warren BB, Wright FV, Zourikian N, Feldman BM.
Citation
Haemophilia. 2026 Aug 27. doi: 10.1111/hae.70368. Epub ahead of print. PMID: 42659406.
Point-of-care musculoskeletal ultrasound for hemophilic arthropathy: a scoping review of scanning protocols by the Imaging Expert Working Group of the International Prophylaxis Study Group
Authors
Nguyen KT, Bakeer N, von Drygalski A, Babyn P, Pergantou H, Dunn A, Lundin B, Strike K.
Citation
Res Pract Thromb Haemost. 2025 Sep 18;9(7):103185. doi: 10.1016/j.rpth.2025.103185.
Exploring the impact of laboratory reagents on pharmacokinetic profiling
Authors
Chelle P, Hajducek D, Iserman E, Iorio A, Edginton A, on behalf of the International Prophylaxis Study Group
Citation
Haemophilia. 2025 Mar 7.DOI: 10.1111/hae.70021. Online ahead of print.
International Prophylaxis Study Group (IPSG) Haemophilia Joint MRI Scale Version 2.0. Letter to the Editor
Authors
Lundin B, Bakeer N, Dunn AL, Gibikote S, Keshava SN, Ljung R, Papakonstantinou O, Pergantou H, Strike K, von Drygalski A, Zhang N, Babyn P, Dover S, Doria AS
Citation
Haemophilia. 2024; 30: 862-864. DOI: 10.1111/hae.15010
Challenges associated with access to recently developed hemophilia treatments in routine care – healthcare professionals’ perspectives.
Authors
Berger K, O’Rourke RH, Matteo Nicola DD, Batorova A, Kavakli K, Mannuccio PM, Wolfgang Schramm W, Rhonda BL, Aledort L on behalf of the International Prophylaxis Study Group.
Citation
Hematologica. 2024 Mar 1; 110(3):673-682. DOI: 10.3324/haematol.2024.285647
Are all licensed hemostatic agents for hemophilia therapy accessible to patients? Letter to the Editor
Authors
Berger K, Batorova A, Bohn RL, di Minno M, Mannucci P, Kavakli K, Schramm W, Aledort L on behalf of the International Prophylaxis Study Group
Citation
Haemophilia. 2022; 28:e256–e258. DOI: 10.1111/hae.14660
The Hemophilia Joint Health Score version 2.1 Validation in Adult Patients Study: A multicenter international study.
Authors
St-Louis J, Abad A, Funk S, Tilak M, Classey S, Zourikian N, McLaughlin P, Lobet S, Hernandez G, Akins S, Wells AJ, Manco-Johnson M, John J, Austin S, Chowdary P, Hermans C, Nugent D, Bakeer N, Mangles S, Hilliard P, Blanchette VS, Feldman BM.
Citation
Res Pract Thromb Haemost. 2022 Mar 25;6(2):e12690. doi: 10.1002/rth2.12690. Erratum in: Res Pract Thromb Haemost. 2022 Apr 25;6(3):e12713. PMID: 35356667; PMCID: PMC8956786.
Terminal half-life of FVIII and FIX according to age, blood group and concentrate type: data from the WAPPS database
Authors
Versloot O, Iserman E, Chelle P, Germini F, Edginton AN, Schutgens REG, Iorio A, Fischer K; Pharmacokinetic (PK) Expert Working Group of the International Prophylaxis Study Group (IPSG).
Citation
J Thromb Haemost. 2021 May20. doi: 10.1111/jth.15395. Epub ahead of print. PMID: 34013558.
Terminal half-life of FVIII and FIX according to age, blood group and concentrate type: data from the WAPPS database
Authors
Versloot O, Iserman E, Chelle P, Germini F, Edginton AN, Schutgens REG, Iorio A, Fischer K; Pharmacokinetic (PK) Expert Working Group of the International Prophylaxis Study Group (IPSG).
Citation
J Thromb Haemost. 2021 Aug;19(8):1896-1906. doi: 10.1111/jth.15395. Epub 2021 Jun 18. PMID: 34013558; PMCID: PMC8361743.