Musculoskeletal Ultrasound in Hemophilia: results and recommendations from a global survey and consensus meeting
Authors Bakeer N, Dover S, Babyn P, Feldman BM, Drygalski A, Doria AS, Ignas DM, Abad A,
Bailey C, Beggs I, Chang EY, Dunn A, Funk S, Sridhar Gibikote S,Goddard N , Hilliard P,
Keshava S, Kruse-Jarres R, Li Y, Lobet S, Manco-Johnson M, Martinoli C, O’Donnell JS,
Papakonstantinou O, Pergantou H, Poonnoose P, Querol F, Srivastava A, Steiner B,
Strike K, Timmer M, Tyrrell PN, Logi Vidarsson L, Blanchette, VS
Citation Research and Practice in Thrombosis and Haemostasis. Accepted
April 2021
Reference Ranges of HJHS Scores in Healthy Adult Males without Hemophilia
The 2020 Virtual
Congress of the International Society on Thrombosis and Haemostasis (July 12 - 14,
2020)
Authors St-Louis J , Abad A , Akin S , Austin S , Chowdary P , Classey S , Funk S , Hernandez G ,
Hilliard P, Manco-Johnson M , S. Mangles S , McLaughlin P , Nugent D , Shapiro A,
Srivastava A , Tilak M , Wells A , Zourikian N , Blanchette V , Feldman BM
Use of ultrasound for assessment of musculoskeletal disease in persons with haemophilia: Results of an international prophylaxis study group global survey
Authors Ignas DM, Doria AS, von Drygalski A, Blanchette VS, Chang EY, Dover S, Fischer K,
Gibikote S, Keshava S, Querol F, Abad A, and Babyn P on behalf of the Ultrasound
Taskforce of the Imaging Expert Working Group of the International Prophylaxis Study
Group (IPSG)
Citation Haemophilia 2020: 26 (4): 685 - 693
Elevated HJHS scores in healthy adult males without hemophilia
The XXXI World Federation
of Hemophilia Congress (May 20 -24, 2018 – Glasgow, Scotland)
Authors St-Louis J, Zourikian N, Funk S, Tilak M, Lobet S, Manco-Johnson M, Srivastava A,
Hilliard P, Tiseo L, Abad A, Wells A, Mangles S, Blanchette V and Feldman B.
Use of ultrasound for assessment of musculoskeletal disease in persons with hemophilia: Results of an International Prophylaxis Study Group (IPSG) survey
The XXXI World Federation of Hemophilia
Congress (May 20 - 24, 2018 – Glasgow, Scotland)
Authors Doria AS, von Drygalski A, Blanchette VS, Chang EY, Dover S, Fischer K, Sridhar G,
Shyamkumar K, Querol F, Babyn P
Use of ultrasound for assessment of musculoskeletal disease in persons with hemophilia: Results of an International Prophylaxis Study Group (IPSG) survey.
Authors Doria AS, von Drygalski A, Blanchette VS, Chang EY, Dover S, Fischer K, Sridhar G,
Shyamkumar K, Querol F, Babyn P.
Citation Haemophilia 2018; 24 (S5): 391, W- P- 085
An International Prophylaxis Study Group (IPSG) survey of prophylaxis in inhibitor positive children/adults with severe haemophilia
Authors Carcao MD, Avila L, Leissinger C, Blanchette VS, Aledort L; Factor Utilization Expert Working Group on behalf of the International Prophylaxis Study Group (IPSG) and participating Survey Investigators.
Citation Haemophilia 2017; 23 (5) : e444 - e447
An International Prophylaxis Study Group (IPSG) survey of prophylaxis in adults with severe haemophilia
Authors Carcao M, Avila L, Leissinger C, Blanchette VS, and Aledort LM on behalf of the Factor
Utilization Expert Working Group of the International Prophylaxis Study Group (IPSG) and
participating Survey Investigators
Citation Haemophilia 2017; 23 (5):
e447 - e450
Hemophilia prophylaxis no longer just for children without inhibitors – increasing use of prophylaxis in other groups (children with inhibitors and adults with and without inhibitors)
Authors Carcao M, Avila L, Blanchette V, Santagostino E, Escuriola-Ettingshausen C, Leissinger C, Lambert T, Aledort L on behalf of the International Prophylaxis Study
Group (IPSG) and Survey Investigators.
Citation Blood 2015; 126: 3535
Global utilization of the International Prophylaxis Study Group (IPSG) physical therapy education web-site module
The XXX World Federation of Hemophillia
Congress (May 11 -15, 2014 – Melbourne, Australia)
Authors Hilliard P, Abad A, Feldman B M, Funk S, Manco-Johnson M, Petrini P, van der Net J,
Zourikian N, and Blanchette VS on behalf of the International Prophylaxis Study Group
A Basic MRI Scale for Hemophilia Arthropathy from the International Prophylaxis Study Group (IPSG)
Authors Lundin B, Manco-Johnson M, Miller SF, Moineddin R, Ignas DM, Ljung R, Dunn AL,
Rivard GE, Babyn P, Keshava SN, Gibikote S, Blanchette VS, Doria AS.
Citation Journal of Thrombosis and Haemostasis 2011; 9: 463
An MRI scale for Assessment of Hemophilic Arthropathy from the International Prophylaxis Study Group
The XXIII International Society on Thrombosis & Haemostasis Congress (July 23-28, 2011 – Kyoto, Japan).
Authors Lundin B, Manco-Johnson ML, Ignas D, Moineddin R , Babyn P, Blanchette VS, Dunn A , Gibikote SV, Keshava SN, Ljung R, Manco-Johnson MJ ,Miller SF, Rivard GE, Doria AS on behalf of the International Prophylaxis Study Group.
Citation Award: Red ribbon award for the top ranked 20% of poster presentations.
An MRI scale for assessment of hemophilic arthropathy from the International Prophylaxis Study Group
Haemophilia 2012 Nov; 18 (6):962-70
Authors Lundin B, Manco-Johnson ML, Ignas DM, Moineddin R, Blanchette VS, Dunn AL, Gibikote SV, Keshava SN, Ljung R, Manco-Johnson MJ,Miller SF, Rivard GE, Doria AS on behalf of the International Prophylaxis Study Group.
Citation Accepted to the XXIII International Society on Thrombosis and Haemostasis Congress (July 23-28, 2011 – Koyoto, Japan).
Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS).
Authors Feldman BM, Funk S, Bergstrom B-M, Zourikian N, Hilliard P, van der Net J, Engelbert RHH, Petrini P, van den Berg M , Manco-Johnson M, Rivard GE, Abad A, and Blanchette VS.
Citation Arthritis Care & Research 2011 Feb; 63 (2):223-30.
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG)
The XXVIII World Federation of Hemophilia Congress (June 1-5, 2008 – Istanbul, Turkey)
Invited symposium as part of the scientific program of the WFH Congress (Chair: Dr. Victor Blanchette).
Dr. Victor Blanchette, Overview of the International Prophylaxis Study Group, Ms. Sharon Funk and Dr. Brian Feldman, Hemophilia Joint Health Score. Dr. Andrea Doria and Dr. Bjorn Lundin, Role of MRI for detection of early arthropathy: A proposed new International MRI Score.
Authors Feldman BM, Funk S, Lundin B, Doria AS, Blanchette V.
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG).
Authors Feldman BM, Funk S, Lundin B, Doria AS, Ljung R, and Blanchette V.
Citation Haemophilia 2008, 14 (Suppl. 3), 162-169.
The economics of haemophilia prophylaxis: governmental and insurer perspectives. Proceedings of the Second International Prophylaxis Study Group (IPSG) Symposium.
Authors Feldman BM, Aledort L, Bullinger M, Delaney FM, Doria AS, Funk S, Giangrande P, Lundin B, Manco-Johnson M, Miners A, Scriba PC, Srivastava A, Schramm W and Blanchette VS.
Citation Haemophilia 2007 Nov; 13 (6): 745-749.
MRI Scoring Systems in hemophilic arthropathy
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Authors Lundin B, Doria A, Kilcoyne R, Babyn P, Miller S, Nuss R, Rivard G, Pettersson H, and Blanchette V.
Discriminant validity and reliability of the Compatible MRI Scoring System for assessment of hemophilic arthropathy in children
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Authors Doria AS, Lundin B, Kilcoyne RF, Babyn PS, Miller SW, Nuss R, Rivard G, Pettersson HT, and Blanchette V.
MRI scoring systems in hemophilic arthropathy.
Authors Lundin B, Doria A, Kilcoyne R, Babyn P, Miller S, Nuss R, Rivard G, Pettersson H, and Blanchette V.
Citation Haemophilia 2006 May; 12 (S2): # 22 S 685
Discriminant validity and reliability of the Compatible MRI Scoring System for assessment of hemophilic arthropathy in children.
Authors Doria A, Lundin B, Kilcoyne RF, Babyn PS, Miller SW, Pettersson HT, and Blanchette V.
Citation Haemophilia 2006 May; 12 (S2): # 22 S 686
Are randomized clinical trials the only truth? Not always
Authors Aledort L, Ljung R, and Blanchette V on behalf of the International Prophylaxis Study Group (IPSG)
Citation Journal of Thrombosis and Haemostasis 2006 Mar; 4 (3): 503 - 504.
Radiological Scoring in Hemophilic Arthropathy
The IX World Federation of Hemophilia Musculoskeletal Congress (September 9-11, 2005 - Istanbul, Turkey).
Authors Lundin B and Blanchette V on behalf of the IPSG MRI Working Group
Proceedings of the International Haemophilia Prophylaxis Study Group Meeting November 2003, Montreal, PQ, Canada.
Authors Feldman BM, Babyn P, Doria AS, Heijnen L, Jacobson J, Kilcoyne R, Lundin B, Manco-Johnson M, McLimont M, Petrini P, Pettersson H, and Blanchette VS on behalf of the IPSG.
Citation Haemophilia 2005 Jan; 11: 58 – 63.
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Invited symposium as part of the scientific program of the WFH Congress (Chairs: Dr. Victor. Blanchette and Dr. Marilyn Manco-Johnson). Dr. Victor Blanchette, Opening remarks. Dr. Bjorn Lundin, X-ray.MRI Scoring Systems: Overview. Dr. Andrea Doria, Compatible Scales for progressive and additive MRI of hemophilic arthropathy. Dr. Pia Petrini, Physical Therapy Scale Overview. Dr. Brian Feldman, Reliability of the Hemophilia Joint Health Score (HJHS).
Authors Doria AS, Feldman BM, Lundin B, and Blanchette VS on behalf of the IPSG
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions.
Authors Manco-Johnson MJ, Pettersson H, Petrini P, Babyn PS, Bergstrom B-M, Bradley CS , Doria AS, Feldman BM, Funk S, Hilliard P, Kilcoyne R, Lundin B, Nuss R, Rivard G, Schoenmakers MA, van den berg M, Wiedel J, Zourikian N, and Blanchette VS.
Citation Haemophilia 2004 Oct; 10 (S4):88 – 93.