Publications
March 25, 2022
The Hemophilia Joint Health Score version 2.1 Validation in Adult Patients Study: A multicenter international study.
Citation
St-Louis J, Abad A, Funk S, Tilak M, Classey S, Zourikian N, McLaughlin P, Lobet S, Hernandez G, Akins S, Wells AJ, Manco-Johnson M, John J, Austin S, Chowdary P, Hermans C, Nugent D, Bakeer N, Mangles S, Hilliard P, Blanchette VS, Feldman BM. The Hemophilia Joint Health Score version 2.1 Validation in Adult Patients Study: A multicenter international study. Res Pract Thromb Haemost. 2022 Mar 25;6(2):e12690. doi: 10.1002/rth2.12690. Erratum in: Res Pract Thromb Haemost. 2022 Apr 25;6(3):e12713. PMID: 35356667; PMCID: PMC8956786.
May 20, 2021
Terminal half-life of FVIII and FIX according to age, blood group and concentrate type: data from the WAPPS database
Citation
J Thromb Haemost. 2021 May
20. doi: 10.1111/jth.15395. Epub ahead of print. PMID: 34013558.
May 11, 2021
Terminal half-life of FVIII and FIX according to age, blood group and concentrate type: data from the WAPPS database
Citation
Versloot O, Iserman E, Chelle P, Germini F, Edginton AN, Schutgens REG, Iorio A, Fischer K; Pharmacokinetic (PK) Expert Working Group of the International Prophylaxis Study Group (IPSG). Terminal half-life of FVIII and FIX according to age, blood group and concentrate type: Data from the WAPPS database. J Thromb Haemost. 2021 Aug;19(8):1896-1906. doi: 10.1111/jth.15395. Epub 2021 Jun 18. PMID: 34013558; PMCID: PMC8361743.
April 1, 2021
Musculoskeletal Ultrasound in Hemophilia: results and recommendations from a global survey and consensus meeting
Citation
Research and Practice in Thrombosis and Haemostasis. Accepted
April 2021
December 5, 2020
Not All Patients Benefit from Switching to Ehl: Results from the Wapps Database
The 62nd
ASH Annual Meeting and Exposition (Dec 5-8, 2020)
Citation
December 5, 2020
Terminal Half-Life of Factor VIII/IX According to Age and Blood Group Based on 8550 Assessments.
The 62nd ASH Annual Meeting and Exposition (Dec 5-8, 2020)
Citation
November 5, 2020
Not All Patients Benefit from Switching to Ehl: Results from the Wapps Database
Citation
Blood
2020; 136 (S1): 21-22.
November 5, 2020
Terminal Half-Life of Factor VIII/IX According to Age and Blood Group Based on 8550 Assessments
Citation
Blood 2020; 136 (S1): 22-23
October 15, 2020
Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS.
Citation
Haemophilia. 2020 Oct 15. doi: 10.1111/hae.14180. Epub ahead of print. PMID:
33058441.
August 11, 2020
Reference Ranges of HJHS Scores in Healthy Adult Males without Hemophilia
Citation
Research Practice in Thrombosis and Haemostasis 2020; 4 (S1): 521, PB1032.
July 12, 2020
Reference Ranges of HJHS Scores in Healthy Adult Males without Hemophilia
The 2020 Virtual
Congress of the International Society on Thrombosis and Haemostasis (July 12 - 14,
2020)
Citation
May 22, 2020
Use of ultrasound for assessment of musculoskeletal disease in persons with haemophilia: Results of an international prophylaxis study group global survey
Citation
Haemophilia 2020: 26 (4): 685 - 693
May 22, 2020
Use of ultrasound for assessment of musculoskeletal disease in persons with haemophilia: Results of an international prophylaxis study group global survey.
Citation
Ignas DM, Doria AS, von Drygalski A, Blanchette VS, Chang EY, Dover S, Fischer K, Gibikote S, Keshava SN, Querol F, Abad A, Babyn P. Use of ultrasound for assessment of musculoskeletal disease in persons with haemophilia: Results of an International Prophylaxis Study Group global survey. Haemophilia. 2020 Jul;26(4):685-693. doi: 10.1111/hae.14006. Epub 2020 May 22. PMID: 32441402.
January 22, 2019
Laboratory Assay Measurement of Modified Clotting Factor Concentrates: A Review of the Literature and Recommendations for Practice
Citation
Journal of Thrombosis and Haemostasis 2019: 17 (4): 567 – 573
July 10, 2018
Prophylaxis re‐visited: The potential impact of novel factor and non‐factor therapies on prophylaxis
Citation
Haemophilia. E-Pub July 10, 2018
May 20, 2018
Elevated HJHS scores in healthy adult males without hemophilia
The XXXI World Federation
of Hemophilia Congress (May 20 -24, 2018 – Glasgow, Scotland)
Citation
May 20, 2018
Use of ultrasound for assessment of musculoskeletal disease in persons with hemophilia: Results of an International Prophylaxis Study Group (IPSG) survey
The XXXI World Federation of Hemophilia
Congress (May 20 - 24, 2018 – Glasgow, Scotland)
Citation
May 10, 2018
Elevated HJHS Scores in healthy adult males without hemophilia
Citation
Haemophilia 2018; 24 (S5): 176, W- FPMED01- 002
May 10, 2018
Use of ultrasound for assessment of musculoskeletal disease in persons with hemophilia: Results of an International Prophylaxis Study Group (IPSG) survey.
Citation
Haemophilia 2018; 24 (S5): 391, W- P- 085
April 24, 2017
An International Prophylaxis Study Group (IPSG) survey of prophylaxis in inhibitor positive children/adults with severe haemophilia
Citation
Haemophilia 2017; 23 (5) : e444 - e447
April 21, 2017
An International Prophylaxis Study Group (IPSG) survey of prophylaxis in adults with severe haemophilia
Citation
Haemophilia 2017; 23 (5):
e447 - e450
March 30, 2017
Tailoring treatment of haemophilia B: accounting for the distribution and clearance of standard and extended half-life FIX concentrates
Citation
Thrombosis and Haemostasis 2017; 117 (6): 1023 - 1030
March 1, 2016
Securing reimbursement for patient centered haemophilia care: major collaborative efforts are needed.
Citation
Haematologica; March 2016 101: 266-268
December 7, 2015
Hemophilia prophylaxis no longer just for children without inhibitors – increasing use of prophylaxis in other groups (children with inhibitors and adults with and without inhibitors).
Citation
57th American Society of Hematology Meeting 2015.
December 3, 2015
Hemophilia prophylaxis no longer just for children without inhibitors – increasing use of prophylaxis in other groups (children with inhibitors and adults with and without inhibitors)
Citation
Blood 2015; 126: 3535
June 20, 2015
Prophylaxis in adult patients with severe hemophilia A or B without inhibitors.
The XXV Congress of the
International Society on Thrombosis and Haemostasis (June 20–25, 2015 – Toronto,
Canada)
Citation
June 20, 2015
Prophylaxis practices in children and adults with inhibitors
The XXV
Congress of the International Society on Thrombosis and Haemostasis (June 20 - 25,
2015 – Toronto, Canada)
Citation
June 1, 2015
Prophylaxis in adult patients with severe hemophilia A or B without inhibitors.
Citation
Journal of Thrombosis and Haemostasis 2015, 13 (S2), # OR105, 134
June 1, 2015
Prophylaxis practices in children and adults with inhibitors.
Citation
Journal of Thrombosis and Haemostasis 2015, 13 (S2), # PO270-MON, 360.
April 25, 2015
Inter-reader reliability of minimum and full MRI protocols for interpretation of findings in hemophilic arthropathy in children.
Citation
Haemophilia 2014, 20 (S3), 89
April 25, 2015
Global utilization of the International Prophylaxis Study Group (IPSG) physical therapy education web-site module
Citation
Haemophilia 2014, 20 (S3), 134-135
May 11, 2014
Global utilization of the International Prophylaxis Study Group (IPSG) physical therapy education web-site module
The XXX World Federation of Hemophillia
Congress (May 11 -15, 2014 – Melbourne, Australia)
Citation
July 1, 2012
Tertiary prophylaxis in adults: What is the rationale?
Citation
Haemophilia 2012 Sept; 18 (5): 722-728
May 1, 2012
An MRI scale for assessment of hemophilic arthropathy from the International Prophylaxis Study Group.
Citation
Haemophilia 2012 Nov; 18 (6):962-70
April 17, 2012
Hemophilia Prophylaxis: How can we justify the costs?
Citation
Haemophilia 2012 Sept; 18 (5): 680-684.
February 22, 2012
Why should we Care about Quality of Life in Hemophilia?
Citation
Haemophilia 2012; May 18 (3) : e154 – e157.
July 31, 2011
A Basic MRI Scale for Hemophilia Arthropathy from the International Prophylaxis Study Group (IPSG)
Citation
Journal of Thrombosis and Haemostasis 2011; 9: 463
July 23, 2011
An MRI scale for Assessment of Hemophilic Arthropathy from the International Prophylaxis Study Group
The XXIII International Society on Thrombosis & Haemostasis Congress (July 23-28, 2011 – Kyoto, Japan).
Citation
Award: Red ribbon award for the top ranked 20% of poster presentations.
July 1, 2011
An MRI scale for assessment of hemophilic arthropathy from the International Prophylaxis Study Group
Haemophilia 2012 Nov; 18 (6):962-70
Citation
Accepted to the XXIII International Society on Thrombosis and Haemostasis Congress (July 23-28, 2011 – Koyoto, Japan).
January 28, 2011
Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS).
Citation
Arthritis Care & Research 2011 Feb; 63 (2):223-30.
August 22, 2010
Implications of coagulation factor VIII and IX pharmacokinetics for clinical practice.
Citation
Haemophilia 2011 Jan; 17(1):2-10.
October 29, 2009
Use of the Hemophilia Joint Health Score
Physical Therapy Pre-Conference Symposium National Hemophilia Foundation 2009 Annual Meeting (October 29-31, 2009 - San Francisco, CA, USA).
Citation
April 7, 2009
Challenges of Patient-Reported Outcome Assessment in Hemophilia Care – A State of the Art Review.
Citation
Value in Health 2009 Jul/Aug ; 12 (5): 808-820.
April 7, 2009
Measuring patient-reported outcomes in haemophilia clinical research.
Citation
Haemophilia 2009 Jul; 15 (4): 843-852.
July 1, 2008
A review of health economic studies in hemophilia prophylaxis: a collaboration of the economics expert working group of the International Prophylaxis Study Group (IPSG).
Citation
Haemophilia 2008, 14 (S2), 133 # 24 PO 17.
July 1, 2008
The Haemophilia Joint Health Score (HJHS) international validation study.
Citation
Haemophilia 2008, 14 (S2), 83 # 12 PO 85.
June 1, 2008
PT HJHS Pre-Congress Workshop
The XXVII International Congress of the World Federation of Hemophillia (June 1-5, 2008 – Istanbul, Turkey)
Citation
June 1, 2008
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG)
The XXVIII World Federation of Hemophilia Congress (June 1-5, 2008 – Istanbul, Turkey)
Invited symposium as part of the scientific program of the WFH Congress (Chair: Dr. Victor Blanchette).
Dr. Victor Blanchette, Overview of the International Prophylaxis Study Group, Ms. Sharon Funk and Dr. Brian Feldman, Hemophilia Joint Health Score. Dr. Andrea Doria and Dr. Bjorn Lundin, Role of MRI for detection of early arthropathy: A proposed new International MRI Score.
Citation
June 1, 2008
A review of health economic studies in hemophilia prophylaxis: a collaboration of the economics expert working group of the International Prophylaxis Study Group (IPSG)
The XXVIII World Federation of Hemophillia Congress (June 1-5, 2008 – Istanbul, Turkey).
Citation
June 1, 2008
The Haemophilia Joint Health Score (HJHS) international validation study
The XXVIII World Federation of Hemophillia Congress (June 1-5, 2008 – Istanbul, Turkey).
Citation
May 16, 2008
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG).
Citation
Haemophilia 2008, 14 (Suppl. 3), 162-169.
April 23, 2008
Introduction of Hemophilia Joint Health Score
Second Buzias Hemophilia Rehab Meeting (April 23-24, 2008 - Buzias, Romania)
Citation
December 30, 2007
Reliability and construct validity of the compatible MRI scoring system for evaluation of elbows in haemophilic children.
Citation
Haemophilia 2008 Mar; 14 (2): 303 - 314.
November 25, 2007
Measurement Properties of the Compatible MRI Scoring System for Evaluation of Hemophilic Elbows in Children
RSNA 93rd Scientific Assembly and 2007 Annual Meeting (Nov 25-30, 2007, Chicago, U.S.A.)
Citation
November 13, 2007
Recommendations for reporting economic evaluations of haemophilia prophylaxis: a nominal groups consensus statement on behalf of the Economics Expert Working Group of the International Prophylaxis Study Group.
Citation
Haemophilia 2008 Jan; 14 (1):127 -132.
September 10, 2007
The economics of haemophilia prophylaxis: governmental and insurer perspectives. Proceedings of the Second International Prophylaxis Study Group (IPSG) Symposium.
Citation
Haemophilia 2007 Nov; 13 (6): 745-749.
January 19, 2007
Hemophilia Joint Health Score
Haemophilia Physiotherapists Meeting (January 19, 2007 – Birmingham, UK)
Citation
January 1, 2007
Measurement Properties of the Compatible MRI Scoring System for Evaluation of Hemophilic Elbows in Children.
Citation
RSNA 93rd Scientific Assembly and 2007 Annual Meeting, #LL-PD2090-RO1.
August 15, 2006
Hemophilia joint health score reliability study.
Citation
Haemophilia 2006 Sept; 12: 518 – 525.
August 15, 2006
Reliability study of the Hemophilia Joint Health Score.
Citation
Haemophilia 2004 Oct; 10 (S3): 79 # 16 S 03.
August 15, 2006
Reliability and construct validity of the compatible MRI scoring system for evaluation of haemophilic knees and ankles of haemophilic children. Expert MRI Working Group of the International Prophylaxis Study Group.
Citation
Haemophilia 2006 Sept; 12: 503 – 513.
June 10, 2006
Hemophilia Joint Health Score instructional video and manual.
Citation
Haemophilia 2006 May; 12 (S2): # 18 FP 532
May 21, 2006
Hemophilia Joint Health Score instructional video and manual
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Citation
May 21, 2006
MRI Scoring Systems in hemophilic arthropathy
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Citation
May 21, 2006
Discriminant validity and reliability of the Compatible MRI Scoring System for assessment of hemophilic arthropathy in children
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Citation
May 21, 2006
Recent developments in clinimetric instruments
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada)
Invited symposium as part of the scientific program of the WFH Congress (Chair: Karen Beeton).
Funk S & Hilliard P – International Joint Health Score: Clinical Scoring System
Citation
May 21, 2006
Hemophilia Joint Health Score Instructional Video and Manual
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada)
Citation
May 10, 2006
MRI scoring systems in hemophilic arthropathy.
Citation
Haemophilia 2006 May; 12 (S2): # 22 S 685
May 10, 2006
Discriminant validity and reliability of the Compatible MRI Scoring System for assessment of hemophilic arthropathy in children.
Citation
Haemophilia 2006 May; 12 (S2): # 22 S 686
March 4, 2006
Are randomized clinical trials the only truth? Not always
Citation
Journal of Thrombosis and Haemostasis 2006 Mar; 4 (3): 503 - 504.
January 1, 2006
Medical experts explore global differences in factor replacement therapy
Citation
Hemophilia World, Jan. 2006:15.
September 9, 2005
Radiological Scoring in Hemophilic Arthropathy
The IX World Federation of Hemophilia Musculoskeletal Congress (September 9-11, 2005 - Istanbul, Turkey).
Citation
May 5, 2005
Reliability of progressive and additive MRI scoring systems for evaluation of hemophilic arthropathy in children: International MRI Working Group.
Citation
Haemophilia 2004 Oct; 10 (S3): 84 # 16 PO 37.
May 5, 2005
Reliability of progressive and additive MRI scoring systems for evaluation of haemophilic arthropathy in children: Expert MRI Working Group of the International Prophylaxis Study Group.
Citation
Haemophilia 2005 May; 11: 245 – 253
March 15, 2005
Compatible scales for progressive and additive magnetic resonance imaging assessments of haemophilic arthropathy.
Citation
Haemophilia 2004 Oct; 10 (S3): 79 # 16 S 02.
March 15, 2005
Compatible scales for progressive and additive MRI assessments of haemophilic arthropathy.
Citation
Haemophilia 2005 Mar; 11: 109 – 115.
March 11, 2005
Commentary: Magnetic resonance imaging as an evaluative tool in haemophilic arthropathy.
Citation
Haemophilia 2005 Mar; 11: 107 – 108.
January 21, 2005
Proceedings of the International Haemophilia Prophylaxis Study Group Meeting November 2003, Montreal, PQ, Canada.
Citation
Haemophilia 2005 Jan; 11: 58 – 63.
October 17, 2004
Reliability study of the Hemophilia Joint Health Score
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Citation
October 17, 2004
Compatible scales for progressive and additive magnetic resonance imaging assessments of haemophilic arthropathy
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Citation
October 17, 2004
Reliability of progressive and additive MRI scoring systems for evaluation of hemophilic arthropathy in children: International MRI Working Group
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Citation
October 17, 2004
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Invited symposium as part of the scientific program of the WFH Congress (Chairs: Dr. Victor. Blanchette and Dr. Marilyn Manco-Johnson). Dr. Victor Blanchette, Opening remarks. Dr. Bjorn Lundin, X-ray.MRI Scoring Systems: Overview. Dr. Andrea Doria, Compatible Scales for progressive and additive MRI of hemophilic arthropathy. Dr. Pia Petrini, Physical Therapy Scale Overview. Dr. Brian Feldman, Reliability of the Hemophilia Joint Health Score (HJHS).
Citation
October 8, 2004
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions.
Citation
Haemophilia 2004 Oct; 10 (S4):88 – 93.