Updates

December 19, 2019

Laboratory Assay Measurement of Modified Clotting Factor Concentrates: A Review of the Literature and Recommendations for Practice

A review of literature on laboratory assay measurement on behalf of the Pharmacokinetics Expert Working Group of the IPSG is available in the Journal of Haemostasis and Thrombosis. 

December 18, 2019

Registration for the Hemophilia Joint Health Score Toolkit

Please visit  http://ipsg.ca/hjhs-portal to register for an account to access the Hemophilia Joint Health Score (HJHS) Toolkit material

December 18, 2019

Update: HJHS Licensing & Copyright

As of 2018, a license with an associated fee is required for any industry initiated and sponsored projects using the HJHS.

September 28, 2018

New Commentary - Prophylaxis re‐visited: The potential impact of novel factor and non‐factor therapies on prophylaxis

A new published commentary on behalf of the Prophylaxis Expert Working Group is available online in the Haemophlia Journal.

April 6, 2017

New Publication: Tailoring treatment of haemophilia B: accounting for the distribution and clearance of standard and extended half-life FIX concentrates

A new publication on behalf of the Pharmacokinetic Expert Working Group is available online ahead of print in the Thrombosis and Haemostasis journal

February 13, 2017

Update: Thai Hemophilia Joint Health Score (HJHS) 2.1 Instruction Video

The Thai version of the hemophilia Joint Health Score (HJHS) 2.1 instructional video is now available for viewing and download.

April 16, 2015

Update: Spanish & Portuguese Hemophilia Joint Health Score (HJHS) 2.1 Instruction Video

The Spanish and Portuguese versions of the Hemophilia Joint Health Score (HJHS) 2.1 instructional video are now available for viewing and download.