Tertiary prophylaxis in adults: What is the rationale?
Authors Gringeri A, Lambert T, Street A, and Aledort L. on behalf of the Adolescent/Adult Prophylaxis Study Group of the International Prophylaxis Study Group.
Citation Haemophilia 2012 Sept; 18 (5): 722-728
An MRI scale for assessment of hemophilic arthropathy from the International Prophylaxis Study Group.
Authors Lundin B, Manco-Johnson ML, Ignas DM, Moineddin R, Blanchette VS, Dunn AL, Gibikote SV, Keshava SN, Ljung R, Manco-Johnson MJ, Miller SF, Rivard GE, Doria AS on behalf of the International Prophylaxis Study Group.
Citation Haemophilia 2012 Nov; 18 (6):962-70
Hemophilia Prophylaxis: How can we justify the costs?
Authors Feldman BM, Berger K, Bohn R, Carcao M, Fischer K, Gringeri A, Hoots K, Mantovani L, Willan A, and Schramm W.
Citation Haemophilia 2012 Sept; 18 (5): 680-684.
Why should we Care about Quality of Life in Hemophilia?
Authors Aledort L, Bullinger M, von Mackensen S, Wasserman J, and Young NL. on behalf of the Health Related Quality of Life Expert Working Group of the International Prophylaxis Study Group.
Citation Haemophilia 2012; May 18 (3) : e154 – e157.
An MRI scale for Assessment of Hemophilic Arthropathy from the International Prophylaxis Study Group
The XXIII International Society on Thrombosis & Haemostasis Congress (July 23-28, 2011 – Kyoto, Japan).
Authors Lundin B, Manco-Johnson ML, Ignas D, Moineddin R , Babyn P, Blanchette VS, Dunn A , Gibikote SV, Keshava SN, Ljung R, Manco-Johnson MJ ,Miller SF, Rivard GE, Doria AS on behalf of the International Prophylaxis Study Group.
Citation Award: Red ribbon award for the top ranked 20% of poster presentations.
An MRI scale for assessment of hemophilic arthropathy from the International Prophylaxis Study Group
Haemophilia 2012 Nov; 18 (6):962-70
Authors Lundin B, Manco-Johnson ML, Ignas DM, Moineddin R, Blanchette VS, Dunn AL, Gibikote SV, Keshava SN, Ljung R, Manco-Johnson MJ,Miller SF, Rivard GE, Doria AS on behalf of the International Prophylaxis Study Group.
Citation Accepted to the XXIII International Society on Thrombosis and Haemostasis Congress (July 23-28, 2011 – Koyoto, Japan).
Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS).
Authors Feldman BM, Funk S, Bergstrom B-M, Zourikian N, Hilliard P, van der Net J, Engelbert RHH, Petrini P, van den Berg M , Manco-Johnson M, Rivard GE, Abad A, and Blanchette VS.
Citation Arthritis Care & Research 2011 Feb; 63 (2):223-30.
Use of the Hemophilia Joint Health Score
Physical Therapy Pre-Conference Symposium National Hemophilia Foundation 2009 Annual Meeting (October 29-31, 2009 - San Francisco, CA, USA).
The Haemophilia Joint Health Score (HJHS) international validation study.
Authors Feldman B M, Funk S, Hilliard P, van der Net J, Zourikian N, Bergstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and on behalf of the International Prophylaxis Study Group.
Citation Haemophilia 2008, 14 (S2), 83 # 12 PO 85.
A review of health economic studies in hemophilia prophylaxis: a collaboration of the economics expert working group of the International Prophylaxis Study Group (IPSG).
Authors Carcao M, Fischer K, Steen-Carlsson K, Schramm W, Feldman B, and Berger K.
Citation Haemophilia 2008, 14 (S2), 133 # 24 PO 17.
PT HJHS Pre-Congress Workshop
The XXVII International Congress of the World Federation of Hemophillia (June 1-5, 2008 – Istanbul, Turkey)
Authors Hilliard, P, Funk S, Zourikian N, Bergstrom B-M, van der Net JJ, and Feldman BM
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG)
The XXVIII World Federation of Hemophilia Congress (June 1-5, 2008 – Istanbul, Turkey)
Invited symposium as part of the scientific program of the WFH Congress (Chair: Dr. Victor Blanchette).
Dr. Victor Blanchette, Overview of the International Prophylaxis Study Group, Ms. Sharon Funk and Dr. Brian Feldman, Hemophilia Joint Health Score. Dr. Andrea Doria and Dr. Bjorn Lundin, Role of MRI for detection of early arthropathy: A proposed new International MRI Score.
Authors Feldman BM, Funk S, Lundin B, Doria AS, Blanchette V.
A review of health economic studies in hemophilia prophylaxis: a collaboration of the economics expert working group of the International Prophylaxis Study Group (IPSG)
The XXVIII World Federation of Hemophillia Congress (June 1-5, 2008 – Istanbul, Turkey).
Authors Carcao M, Fischer K, Steen-Carlsson K, Schramm W, Feldman B, and Berger K.
The Haemophilia Joint Health Score (HJHS) international validation study
The XXVIII World Federation of Hemophillia Congress (June 1-5, 2008 – Istanbul, Turkey).
Authors Feldman B M, Funk S, Hilliard P, van der Net J, Zourikian N, Bergstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and on behalf of the International Prophylaxis Study Group.
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG).
Authors Feldman BM, Funk S, Lundin B, Doria AS, Ljung R, and Blanchette V.
Citation Haemophilia 2008, 14 (Suppl. 3), 162-169.
Introduction of Hemophilia Joint Health Score
Second Buzias Hemophilia Rehab Meeting (April 23-24, 2008 - Buzias, Romania)
Reliability and construct validity of the compatible MRI scoring system for evaluation of elbows in haemophilic children.
Authors Doria AS, Lundin B, Miller S, Kilcoyne R (In Memoriam), Dunn A, Thomas S, Rivard G, Moineddin R, Babyn PS, and the Expert Imaging Working Group of the International Prophylaxis Study Group.
Citation Haemophilia 2008 Mar; 14 (2): 303 - 314.
Recommendations for reporting economic evaluations of haemophilia prophylaxis: a nominal groups consensus statement on behalf of the Economics Expert Working Group of the International Prophylaxis Study Group.
Authors Nicholson A, Berger K, Bohn R, Carcao M, Fischer K, Gringeri A, Mantovani L, Hoots K,, Schramm W, van Hout BA, Willan AR, and Feldman BM.
Citation Haemophilia 2008 Jan; 14 (1):127 -132.
The economics of haemophilia prophylaxis: governmental and insurer perspectives. Proceedings of the Second International Prophylaxis Study Group (IPSG) Symposium.
Authors Feldman BM, Aledort L, Bullinger M, Delaney FM, Doria AS, Funk S, Giangrande P, Lundin B, Manco-Johnson M, Miners A, Scriba PC, Srivastava A, Schramm W and Blanchette VS.
Citation Haemophilia 2007 Nov; 13 (6): 745-749.
Hemophilia Joint Health Score
Haemophilia Physiotherapists Meeting (January 19, 2007 – Birmingham, UK)
Hemophilia joint health score reliability study.
Authors Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation Haemophilia 2006 Sept; 12: 518 – 525.
Reliability study of the Hemophilia Joint Health Score.
Authors Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation Haemophilia 2004 Oct; 10 (S3): 79 # 16 S 03.
Reliability and construct validity of the compatible MRI scoring system for evaluation of haemophilic knees and ankles of haemophilic children. Expert MRI Working Group of the International Prophylaxis Study Group.
Authors Doria AS, Babyn PS, Lundin B, Kilcoyne RF, Miller S, Rivard GE, Moineddin R, and Pettersson H.
Citation Haemophilia 2006 Sept; 12: 503 – 513.
Hemophilia Joint Health Score instructional video and manual.
Authors Hilliard P, Abad A, Bradley CS, Funk S, Zourikian N, and Bergstrom B-M.
Citation Haemophilia 2006 May; 12 (S2): # 18 FP 532
Hemophilia Joint Health Score Instructional Video and Manual
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada)
Authors Hilliard P on behalf of the IPSG
Hemophilia Joint Health Score instructional video and manual
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Authors Hilliard P, Abad A, Bradley CS, Funk S, Zourikian N, and Bergstrom B-M.
MRI Scoring Systems in hemophilic arthropathy
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Authors Lundin B, Doria A, Kilcoyne R, Babyn P, Miller S, Nuss R, Rivard G, Pettersson H, and Blanchette V.
Discriminant validity and reliability of the Compatible MRI Scoring System for assessment of hemophilic arthropathy in children
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Authors Doria AS, Lundin B, Kilcoyne RF, Babyn PS, Miller SW, Nuss R, Rivard G, Pettersson HT, and Blanchette V.
Recent developments in clinimetric instruments
The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada)
Invited symposium as part of the scientific program of the WFH Congress (Chair: Karen Beeton).
Funk S & Hilliard P – International Joint Health Score: Clinical Scoring System
Authors Funk S, Hilliard P, Doria AS, Lundin B on behalf of the IPSG
MRI scoring systems in hemophilic arthropathy.
Authors Lundin B, Doria A, Kilcoyne R, Babyn P, Miller S, Nuss R, Rivard G, Pettersson H, and Blanchette V.
Citation Haemophilia 2006 May; 12 (S2): # 22 S 685
Discriminant validity and reliability of the Compatible MRI Scoring System for assessment of hemophilic arthropathy in children.
Authors Doria A, Lundin B, Kilcoyne RF, Babyn PS, Miller SW, Pettersson HT, and Blanchette V.
Citation Haemophilia 2006 May; 12 (S2): # 22 S 686
Are randomized clinical trials the only truth? Not always
Authors Aledort L, Ljung R, and Blanchette V on behalf of the International Prophylaxis Study Group (IPSG)
Citation Journal of Thrombosis and Haemostasis 2006 Mar; 4 (3): 503 - 504.
Radiological Scoring in Hemophilic Arthropathy
The IX World Federation of Hemophilia Musculoskeletal Congress (September 9-11, 2005 - Istanbul, Turkey).
Authors Lundin B and Blanchette V on behalf of the IPSG MRI Working Group
Reliability of progressive and additive MRI scoring systems for evaluation of haemophilic arthropathy in children: Expert MRI Working Group of the International Prophylaxis Study Group.
Authors Doria AS, Lundin B, Kilcoyne RF, Babyn PS, Miller S, Nuss R, Rivard G, Stephens D, and Pettersson H.
Citation Haemophilia 2005 May; 11: 245 – 253
Compatible scales for progressive and additive MRI assessments of haemophilic arthropathy.
Authors Lundin B, Babyn P, Doria AS, Kilcoyne R, Ljung R, Miller S, Nuss R, Rivard GE, and Pettersson H on behalf of the International Prophylaxis Study Group.
Citation Haemophilia 2005 Mar; 11: 109 – 115.
Compatible scales for progressive and additive magnetic resonance imaging assessments of haemophilic arthropathy.
Authors Lundin B, Nuss R, Kilcoyne R, Doria A, Pettersson H, and Ljung R.
Citation Haemophilia 2004 Oct; 10 (S3): 79 # 16 S 02.
Proceedings of the International Haemophilia Prophylaxis Study Group Meeting November 2003, Montreal, PQ, Canada.
Authors Feldman BM, Babyn P, Doria AS, Heijnen L, Jacobson J, Kilcoyne R, Lundin B, Manco-Johnson M, McLimont M, Petrini P, Pettersson H, and Blanchette VS on behalf of the IPSG.
Citation Haemophilia 2005 Jan; 11: 58 – 63.
Reliability study of the Hemophilia Joint Health Score
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Authors Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Compatible scales for progressive and additive magnetic resonance imaging assessments of haemophilic arthropathy
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Authors Lundin B, Nuss R, Kilcoyne R, Doria A, Pettersson H, and Ljung R
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Invited symposium as part of the scientific program of the WFH Congress (Chairs: Dr. Victor. Blanchette and Dr. Marilyn Manco-Johnson). Dr. Victor Blanchette, Opening remarks. Dr. Bjorn Lundin, X-ray.MRI Scoring Systems: Overview. Dr. Andrea Doria, Compatible Scales for progressive and additive MRI of hemophilic arthropathy. Dr. Pia Petrini, Physical Therapy Scale Overview. Dr. Brian Feldman, Reliability of the Hemophilia Joint Health Score (HJHS).
Authors Doria AS, Feldman BM, Lundin B, and Blanchette VS on behalf of the IPSG
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions.
Authors Manco-Johnson MJ, Pettersson H, Petrini P, Babyn PS, Bergstrom B-M, Bradley CS , Doria AS, Feldman BM, Funk S, Hilliard P, Kilcoyne R, Lundin B, Nuss R, Rivard G, Schoenmakers MA, van den berg M, Wiedel J, Zourikian N, and Blanchette VS.
Citation Haemophilia 2004 Oct; 10 (S4):88 – 93.