Musculoskeletal Ultrasound in Hemophilia: results and recommendations from a global survey and consensus meeting
Authors Bakeer N, Dover S, Babyn P, Feldman BM, Drygalski A, Doria AS, Ignas DM, Abad A,
Bailey C, Beggs I, Chang EY, Dunn A, Funk S, Sridhar Gibikote S,Goddard N , Hilliard P,
Keshava S, Kruse-Jarres R, Li Y, Lobet S, Manco-Johnson M, Martinoli C, O’Donnell JS,
Papakonstantinou O, Pergantou H, Poonnoose P, Querol F, Srivastava A, Steiner B,
Strike K, Timmer M, Tyrrell PN, Logi Vidarsson L, Blanchette, VS
Citation Research and Practice in Thrombosis and Haemostasis. Accepted
April 2021
Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS.
Authors Kuijlaars IAR, van der Net J, Feldman BM, Aspdahl M, Bladen M, de Boer W, CuestaBarriuso R, Matlary RED, Funk SM, Hilliard P, John JA, Kempton CL, de Kleijn P, MancoJohnson M, Petrini P, Poonnoose P, St-Louis J, Thomas S, Timmer MA, Trakymiene SS,
van Vlimmeren L, Fischer K
Citation Haemophilia. 2020 Oct 15. doi: 10.1111/hae.14180. Epub ahead of print. PMID:
33058441.
Reference Ranges of HJHS Scores in Healthy Adult Males without Hemophilia
The 2020 Virtual
Congress of the International Society on Thrombosis and Haemostasis (July 12 - 14,
2020)
Authors St-Louis J , Abad A , Akin S , Austin S , Chowdary P , Classey S , Funk S , Hernandez G ,
Hilliard P, Manco-Johnson M , S. Mangles S , McLaughlin P , Nugent D , Shapiro A,
Srivastava A , Tilak M , Wells A , Zourikian N , Blanchette V , Feldman BM
Elevated HJHS scores in healthy adult males without hemophilia
The XXXI World Federation
of Hemophilia Congress (May 20 -24, 2018 – Glasgow, Scotland)
Authors St-Louis J, Zourikian N, Funk S, Tilak M, Lobet S, Manco-Johnson M, Srivastava A,
Hilliard P, Tiseo L, Abad A, Wells A, Mangles S, Blanchette V and Feldman B.
Elevated HJHS Scores in healthy adult males without hemophilia
Authors Feldman B, Zourikian N, Funk S, Tilak M, Lobet S, Manco-Johnson M, Srivastava A,
Hilliard P, Tiseo L and St-Louis J
Citation Haemophilia 2018; 24 (S5): 176, W- FPMED01- 002
Global utilization of the International Prophylaxis Study Group (IPSG) physical therapy education web-site module
The XXX World Federation of Hemophillia
Congress (May 11 -15, 2014 – Melbourne, Australia)
Authors Hilliard P, Abad A, Feldman B M, Funk S, Manco-Johnson M, Petrini P, van der Net J,
Zourikian N, and Blanchette VS on behalf of the International Prophylaxis Study Group
Hemophilia Prophylaxis: How can we justify the costs?
Authors Feldman BM, Berger K, Bohn R, Carcao M, Fischer K, Gringeri A, Hoots K, Mantovani L, Willan A, and Schramm W.
Citation Haemophilia 2012 Sept; 18 (5): 680-684.
Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS).
Authors Feldman BM, Funk S, Bergstrom B-M, Zourikian N, Hilliard P, van der Net J, Engelbert RHH, Petrini P, van den Berg M , Manco-Johnson M, Rivard GE, Abad A, and Blanchette VS.
Citation Arthritis Care & Research 2011 Feb; 63 (2):223-30.
The Haemophilia Joint Health Score (HJHS) international validation study.
Authors Feldman B M, Funk S, Hilliard P, van der Net J, Zourikian N, Bergstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and on behalf of the International Prophylaxis Study Group.
Citation Haemophilia 2008, 14 (S2), 83 # 12 PO 85.
A review of health economic studies in hemophilia prophylaxis: a collaboration of the economics expert working group of the International Prophylaxis Study Group (IPSG).
Authors Carcao M, Fischer K, Steen-Carlsson K, Schramm W, Feldman B, and Berger K.
Citation Haemophilia 2008, 14 (S2), 133 # 24 PO 17.
PT HJHS Pre-Congress Workshop
The XXVII International Congress of the World Federation of Hemophillia (June 1-5, 2008 – Istanbul, Turkey)
Authors Hilliard, P, Funk S, Zourikian N, Bergstrom B-M, van der Net JJ, and Feldman BM
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG)
The XXVIII World Federation of Hemophilia Congress (June 1-5, 2008 – Istanbul, Turkey)
Invited symposium as part of the scientific program of the WFH Congress (Chair: Dr. Victor Blanchette).
Dr. Victor Blanchette, Overview of the International Prophylaxis Study Group, Ms. Sharon Funk and Dr. Brian Feldman, Hemophilia Joint Health Score. Dr. Andrea Doria and Dr. Bjorn Lundin, Role of MRI for detection of early arthropathy: A proposed new International MRI Score.
Authors Feldman BM, Funk S, Lundin B, Doria AS, Blanchette V.
A review of health economic studies in hemophilia prophylaxis: a collaboration of the economics expert working group of the International Prophylaxis Study Group (IPSG)
The XXVIII World Federation of Hemophillia Congress (June 1-5, 2008 – Istanbul, Turkey).
Authors Carcao M, Fischer K, Steen-Carlsson K, Schramm W, Feldman B, and Berger K.
The Haemophilia Joint Health Score (HJHS) international validation study
The XXVIII World Federation of Hemophillia Congress (June 1-5, 2008 – Istanbul, Turkey).
Authors Feldman B M, Funk S, Hilliard P, van der Net J, Zourikian N, Bergstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and on behalf of the International Prophylaxis Study Group.
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG).
Authors Feldman BM, Funk S, Lundin B, Doria AS, Ljung R, and Blanchette V.
Citation Haemophilia 2008, 14 (Suppl. 3), 162-169.
Recommendations for reporting economic evaluations of haemophilia prophylaxis: a nominal groups consensus statement on behalf of the Economics Expert Working Group of the International Prophylaxis Study Group.
Authors Nicholson A, Berger K, Bohn R, Carcao M, Fischer K, Gringeri A, Mantovani L, Hoots K,, Schramm W, van Hout BA, Willan AR, and Feldman BM.
Citation Haemophilia 2008 Jan; 14 (1):127 -132.
The economics of haemophilia prophylaxis: governmental and insurer perspectives. Proceedings of the Second International Prophylaxis Study Group (IPSG) Symposium.
Authors Feldman BM, Aledort L, Bullinger M, Delaney FM, Doria AS, Funk S, Giangrande P, Lundin B, Manco-Johnson M, Miners A, Scriba PC, Srivastava A, Schramm W and Blanchette VS.
Citation Haemophilia 2007 Nov; 13 (6): 745-749.
Hemophilia joint health score reliability study.
Authors Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation Haemophilia 2006 Sept; 12: 518 – 525.
Reliability study of the Hemophilia Joint Health Score.
Authors Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation Haemophilia 2004 Oct; 10 (S3): 79 # 16 S 03.
Proceedings of the International Haemophilia Prophylaxis Study Group Meeting November 2003, Montreal, PQ, Canada.
Authors Feldman BM, Babyn P, Doria AS, Heijnen L, Jacobson J, Kilcoyne R, Lundin B, Manco-Johnson M, McLimont M, Petrini P, Pettersson H, and Blanchette VS on behalf of the IPSG.
Citation Haemophilia 2005 Jan; 11: 58 – 63.
Reliability study of the Hemophilia Joint Health Score
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Authors Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions
The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Invited symposium as part of the scientific program of the WFH Congress (Chairs: Dr. Victor. Blanchette and Dr. Marilyn Manco-Johnson). Dr. Victor Blanchette, Opening remarks. Dr. Bjorn Lundin, X-ray.MRI Scoring Systems: Overview. Dr. Andrea Doria, Compatible Scales for progressive and additive MRI of hemophilic arthropathy. Dr. Pia Petrini, Physical Therapy Scale Overview. Dr. Brian Feldman, Reliability of the Hemophilia Joint Health Score (HJHS).
Authors Doria AS, Feldman BM, Lundin B, and Blanchette VS on behalf of the IPSG
Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions.
Authors Manco-Johnson MJ, Pettersson H, Petrini P, Babyn PS, Bergstrom B-M, Bradley CS , Doria AS, Feldman BM, Funk S, Hilliard P, Kilcoyne R, Lundin B, Nuss R, Rivard G, Schoenmakers MA, van den berg M, Wiedel J, Zourikian N, and Blanchette VS.
Citation Haemophilia 2004 Oct; 10 (S4):88 – 93.