Member Profile

PT Pamela Hilliard
B.Sc (PT)

Pam has worked at The Hospital for Sick Children since 1978 and in the Hemophilia Comprehensive Care Clinic since 1982.
Co-chair of the Canadian Physiotherapists in Hemophilia Care from 1997-2006. She has volunteered on a number of projects with the Toronto and Central Ontario Region (TCOR) and the Canadian Hemophilia Society (CHS).

Member since its inception (2002) of the IPSG Physiotherapy Expert Working Group and the development of the Hemophilia Joint Health Score (HJHS). Pam has been involved in teaching workshops on musculoskeletal assessment and treatment in hemophilia in Belarus, China and Brazil. Has also given presentations at Physiotherapy sessions in Birmingham, England; Tianjin, China and St. Gallen, Switzerland as well as at World Federation of Hemophilia Congresses. Her involvement in collaborative clinical research projects includes Hemophilia programs in Vellore, India; Utrecht, The Netherlands; Beijing and Guanzhou, China and Sao Paulo, Brazil.

Key Publications
  1. ‘Train-the-Trainer’: an effective and successful model to accelerate training and improve physiotherapy services for persons with haemophilia in China. Chen L, Sun J, Hilliard PE, Zourikian N, Hang M, Blanchette VS, Poon MC, Luke KH. Haemophilia. 2014 May; 20(3): 441-5.
  2. Chinese Hemophilia Joint Health Score 2.1 Reliability Study. Sun J, Hilliard PE, Feldman BM, Zourikian N, Chen L, Blanchette VS, Luke KH, Poon, MC.  Haemophilia. 2014 May; 20(3): 435-40. 
  3. Validation of a new pediatric joint scoring system from the international prophylaxis study group: Validity of the Hemophilia Joint Health Score (HJHS).  Feldman BM, Funk SM, Bergstrom BM, Zourikian N, Hillard P, Van der Net J, Engelbert R, Petrini P, van den Berg HM, Manco Johnson MJ. Arthritis Care Res . Vol. 63, No. 2, February 2011, pp 223–230
  4. Musculoskeletal health of subjects with hemophilia A treated with tailored prophylaxis: Canadian Hemophilia Primary Prophylaxis (CHPS) Study. Hilliard P., Zourikian N., Blanchette V., Chan AK., Elliott B., Israels S., LaferriereN., Nilson J., Poon MC., Van Neste C., Jarock C., Wu JK., McLimont M., Feldman B. Journal of Thrombosis and Haemostasis Vol.11 Issue 3 Mar. 2013
  5. Consequences of Delayed Therapy for Sports Related Bleeds in Boys with Mild to Moderate Bleeding Disorders not on Prophylaxis. Kumar R., Stain A.M., Hilliard P., Carcao M. Haemophilia 2013 (1-3)

Current Positions/Chairs:

  • Member
    The Physiotherapy Expert Working Group of the IPSG

Key Institutions

  • The Hospital for Sick Children
    Department of Rehabilitation Services
    Toronto, Canada
  • University of Toronto
    Clinical Lecturer, Department of Rehabilitation Medicine
    Toronto, Canada

Research Activities

  • Canadian Hemophilia Dose Escalating Primary Prophylaxis Study. Multi-centre Canadian study ongoing from 1997
  • Novel Imaging Techniques for Assessment of Early Cartilage and Soft Tissue Changes in Hemophilic Ankles. PI Dr. A. Doria
  • Measurement Properties of Ultrasound Assessment of Hemophilic Arthropathy, MRI Correlation. Collaborative research with Christian Medical College, Vellore India
  • Development of a Systematic Protocol for Ultrasound Imaging of Hemophilic Elbows. PI Dr. Andrea Doria
  • Measurement Properties of Ultrasound Assessment of Hemophilic Arthropathy, MRI Correlation. Healthy Volunteer group. Collaborative research with CMC, Vellore, India
  • Comparing the Burden of Illness of Hemophilia in the Developing and the Developed World: The Sao Paulo –Toronto Hemophilia Study. PI Dr. B. Feldman
  • Hemophilia and Joint Health Score Reliability (2003) and Validation Studies (2005-2007)

Research Interests

  • Evidence-based physiotherapy approaches in hemophilia especially relating to prophylaxis

Achievements

  • Received the TCOR Award of Appreciation in 2003 and the Canadian Hemophilia Society Award of Appreciation in 2004.
  • Bayer Caregiver Education Award 2004 (to develop HJHS Instructional Video and Manual)
  • Pam also received the University of Toronto Rehabilitation Medicine Sector Exceptional Achievement Award: Practitioner category 2009.

Publications

October 15, 2020

Evaluating international Haemophilia Joint Health Score (HJHS) results combined with expert opinion: Options for a shorter HJHS.

Authors
Kuijlaars IAR, van der Net J, Feldman BM, Aspdahl M, Bladen M, de Boer W, CuestaBarriuso R, Matlary RED, Funk SM, Hilliard P, John JA, Kempton CL, de Kleijn P, MancoJohnson M, Petrini P, Poonnoose P, St-Louis J, Thomas S, Timmer MA, Trakymiene SS, van Vlimmeren L, Fischer K
Citation
Haemophilia. 2020 Oct 15. doi: 10.1111/hae.14180. Epub ahead of print. PMID: 33058441.
August 11, 2020

Reference Ranges of HJHS Scores in Healthy Adult Males without Hemophilia

Authors
St-Louis J , Abad A , Akin S , Austin S , Chowdary P , Classey S , Funk S , Hernandez G , Hilliard P, Manco-Johnson M , S. Mangles S , McLaughlin P , Nugent D , Shapiro A, Srivastava A , Tilak M , Wells A , Zourikian N , Blanchette V , Feldman BM.
Citation
Research Practice in Thrombosis and Haemostasis 2020; 4 (S1): 521, PB1032.
July 12, 2020

Reference Ranges of HJHS Scores in Healthy Adult Males without Hemophilia

The 2020 Virtual Congress of the International Society on Thrombosis and Haemostasis (July 12 - 14, 2020)
Authors
St-Louis J , Abad A , Akin S , Austin S , Chowdary P , Classey S , Funk S , Hernandez G , Hilliard P, Manco-Johnson M , S. Mangles S , McLaughlin P , Nugent D , Shapiro A, Srivastava A , Tilak M , Wells A , Zourikian N , Blanchette V , Feldman BM
Citation
May 20, 2018

Elevated HJHS scores in healthy adult males without hemophilia

The XXXI World Federation of Hemophilia Congress (May 20 -24, 2018 – Glasgow, Scotland)
Authors
St-Louis J, Zourikian N, Funk S, Tilak M, Lobet S, Manco-Johnson M, Srivastava A, Hilliard P, Tiseo L, Abad A, Wells A, Mangles S, Blanchette V and Feldman B.
Citation
May 10, 2018

Elevated HJHS Scores in healthy adult males without hemophilia

Authors
Feldman B, Zourikian N, Funk S, Tilak M, Lobet S, Manco-Johnson M, Srivastava A, Hilliard P, Tiseo L and St-Louis J
Citation
Haemophilia 2018; 24 (S5): 176, W- FPMED01- 002
May 11, 2014

Global utilization of the International Prophylaxis Study Group (IPSG) physical therapy education web-site module

The XXX World Federation of Hemophillia Congress (May 11 -15, 2014 – Melbourne, Australia)
Authors
Hilliard P, Abad A, Feldman B M, Funk S, Manco-Johnson M, Petrini P, van der Net J, Zourikian N, and Blanchette VS on behalf of the International Prophylaxis Study Group
Citation
January 28, 2011

Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS).

Authors
Feldman BM, Funk S, Bergstrom B-M, Zourikian N, Hilliard P, van der Net J, Engelbert RHH, Petrini P, van den Berg M , Manco-Johnson M, Rivard GE, Abad A, and Blanchette VS.
Citation
Arthritis Care & Research 2011 Feb; 63 (2):223-30.
July 1, 2008

The Haemophilia Joint Health Score (HJHS) international validation study.

Authors
Feldman B M, Funk S, Hilliard P, van der Net J, Zourikian N, Bergstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and on behalf of the International Prophylaxis Study Group.
Citation
Haemophilia 2008, 14 (S2), 83 # 12 PO 85.
June 1, 2008

The Haemophilia Joint Health Score (HJHS) international validation study

The XXVIII World Federation of Hemophillia Congress (June 1-5, 2008 – Istanbul, Turkey).
Authors
Feldman B M, Funk S, Hilliard P, van der Net J, Zourikian N, Bergstrom B-M, Engelbert RHH, Abad A, Petrini P, Manco-Johnson M, and on behalf of the International Prophylaxis Study Group.
Citation
June 1, 2008

PT HJHS Pre-Congress Workshop

The XXVII International Congress of the World Federation of Hemophillia (June 1-5, 2008 – Istanbul, Turkey)
Authors
Hilliard, P, Funk S, Zourikian N, Bergstrom B-M, van der Net JJ, and Feldman BM
Citation
January 19, 2007

Hemophilia Joint Health Score

Haemophilia Physiotherapists Meeting (January 19, 2007 – Birmingham, UK)
Authors
Hilliard P.
Citation
August 15, 2006

Hemophilia joint health score reliability study.

Authors
Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation
Haemophilia 2006 Sept; 12: 518 – 525.
August 15, 2006

Reliability study of the Hemophilia Joint Health Score.

Authors
Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation
Haemophilia 2004 Oct; 10 (S3): 79 # 16 S 03.
June 10, 2006

Hemophilia Joint Health Score instructional video and manual.

Authors
Hilliard P, Abad A, Bradley CS, Funk S, Zourikian N, and Bergstrom B-M.
Citation
Haemophilia 2006 May; 12 (S2): # 18 FP 532
May 21, 2006

Hemophilia Joint Health Score instructional video and manual

The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada).
Authors
Hilliard P, Abad A, Bradley CS, Funk S, Zourikian N, and Bergstrom B-M.
Citation
May 21, 2006

Recent developments in clinimetric instruments

The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada) Invited symposium as part of the scientific program of the WFH Congress (Chair: Karen Beeton). Funk S & Hilliard P – International Joint Health Score: Clinical Scoring System
Authors
Funk S, Hilliard P, Doria AS, Lundin B on behalf of the IPSG
Citation
May 21, 2006

Hemophilia Joint Health Score Instructional Video and Manual

The XXVII World Federation of Hemophillia Congress (May 21-25, 2006 - Vancouver, Canada)
Authors
Hilliard P on behalf of the IPSG
Citation
October 17, 2004

Reliability study of the Hemophilia Joint Health Score

The XXVI World Federation of Hemophillia Congress (October 17-21, 2004 - Bangkok, Thailand).
Authors
Hilliard P, Funk S, Zourikian N, Bergstrom B-M, Bradley CS, McLimont M, Manco-Johnson M, Petrini P, van den Berg M, and Feldman BM.
Citation
October 8, 2004

Physical therapy and imaging outcome measures in a haemophilia population treated with factor prophylaxis: current status and future directions.

Authors
Manco-Johnson MJ, Pettersson H, Petrini P, Babyn PS, Bergstrom B-M, Bradley CS , Doria AS, Feldman BM, Funk S, Hilliard P, Kilcoyne R, Lundin B, Nuss R, Rivard G, Schoenmakers MA, van den berg M, Wiedel J, Zourikian N, and Blanchette VS.
Citation
Haemophilia 2004 Oct; 10 (S4):88 – 93.