Member Profile
Sharon has been treating persons with hemophilia for over 41 years, and was a founding member of the National Hemophilia Foundation’s (NHF) Physical Therapy Working Group. She developed the joint evaluation tool for the Joint Outcome Study; a prospective, randomized study comparing the joint outcomes of young boys with hemophilia on primary prophylaxis versus those receiving on-demand therapy. She has been involved in the development and psychometric testing confirming the reliability and validity of the Hemophilia Joint Health Score. (HJHS), an impairment measure for evaluating joint disease in hemophilia.
She is currently the co-chair of the Physical Function and Joint Health Expert Working Group of the Hemophilia International Prophylaxis Study Group of which she has been a member for the past 18 years. She serves on the leadership team of AFFIRM (Adult Fellowship for Integrating Responsible Mentors), an international leadership group for young adult men with hemophilia. She is a member of the American Physical Therapy Association, the National Hemophilia Foundation (NHF) and the World Federation of Hemophilia Musculoskeletal Committee. In 1997, she was the recipient of the first NHF Physical Therapist of the Year Award and in 2001 she received the National Hemophilia Foundation Physical Therapy Excellence Fellowship.
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Feldman B; Funk S; Bergstrom BM; Zourikian N; Hilliard P; van der Net J; Engelbert R; Petrini P; van den Berg HM; Manco-Johnson MJ; Rivard GE.; Abad A and Blanchette V. Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score (HJHS). Arthritis Care & Research . 2011 Feb; 63 (2):223-30.
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Wiedel J; Stabler S; Geraghty S and Funk S. Joint Replacement Surgery in Hemophilia. World Federation of Hemophilia Monograph Series 2010.
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Soucie JM.; Wang C; Forsyth A; Funk S; Denny M; Roach K; Boone D. Range of Motion Measurements: Reference Values and a Database for Comparison Studies. Haemophilia.. May 2011;17(3):500-507.
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4. Feldman BM, Funk S, Lundin B, Doria AS, Ljung R and Blanchette V. Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG). Haemophilia 2008, 14 (Suppl.3), 162-169.
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Manco-Johnson MJ, Abshire TC, Shapiro AD, Riske B, Hacker MR, Kilcoyne R, Ingram JD, Manco-Johnson ML, Funk SM, Jacobson LJ, Valentino LA, Hoots WK, Buchanan GR, DiMichele D, Recht M, Brown D, Leissinger C, Bleak S, Cohen A, Mathew P, Matsunaga A, Medeiros D, Nugent D, Thomas GA, Thompson AA, McRedmond K, Soucie JM, Austin H, and Evatt BL. Recombinant Factor VIII For the Prevention of Joint Disease in Children with Severe Hemophilia: Prophylaxis Compared With Episodic Treatment. NEJM 2007;357:535-44.